The rating scale is as follows:
0 Did not apply to me at all
1 Applied to me to some degree, or some of the time
2 Applied to me to a considerable degree, or a good part of time
3 Applied to me very much, or most of the time
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Please read each question, assess your feelings, then fill in the circle that gives the best answer for you.
]]>Vasculitis conditions are rare and often debilitating inflammatory autoimmune conditions. Compared with other health conditions, research funding for vasculitis conditions is low and the number of expert medical practitioners and specialists in the field are few. This means that many people who contract vasculitis conditions often "fall through the cracks" in medical and other support systems. This survey is designed to explore how well vasculitis sufferers are coping and what their levels of support really are.
The survey is divided into 10 sections: There are some demographic related questions (7 items), some items concerned with your disability status (7 items), your health status (4 items), your health service and medication use (5 items), your quality of life (26 items), your relationship strength (7 items), your level of distress (10 items), your level of fatigue (4 items), your level of anger (5 items) and finally a general health question.
The survey should take less than twenty minutes to complete. Please do not take too much time over your answers. Quite often your first thought or first reaction will be the most appropriate.
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